If you are a family of a child with DIPG and you would like to consider tumor tissue donation in the event your child succumbs to his or her tumor, arrangements can be made in advance to ensure that such a donation can be made.  Speaking with your oncologist, nurse, or social worker in advance can ensure there is adequate time to make arrangements and that you have a plan in place that will help the process to go smoothly after your child’s passing.  Researchers generally prefer to obtain tissue as soon as possible after your child passes away, but your family’s needs will come first.  Tissue donation can be accomplished whether your child dies at home or at a hospital.